Charity

The Foundation for Retinal Research was founded in 1998 at a time when very little was known or published about Leber’s Congenital Amaurosis (LCA), a rare and aggressive retinal degenerative disease affecting children.  LCA results in severe visual impairments or blindness. Families affected by Leber’s Congenital Amaurosis had a difficult time acquiring information and making connections to help them understand the eye disorder. The Foundation for Retinal Research has bridged the gap between families and research.

The FRR is committed to finding treatments and cures for Retinal
Degenerative Diseases and supporting the lives of affected families. To this end, the Foundation brings people together from around the globe through bi-annual conferences, providing a venue for families to connect and many of the worlds preeminent doctors and
researchers to share current information.

Research continues to make great strides, with recent breakthroughs in innovative gene therapy bringing a cure that much closer to reality.  Thanks to the successes of such gene therapy, restoration of sight is beginning to occur.  This is promising news given 10 million people in the United States alone suffer from retinal degenerative diseases.

It is no longer a matter of if there will be a cure, but when.